New York State: Patient-Advocates Who Built The Program Are Fighting To Access It

MEDFORD, New York – Grimacing, Donna Schwier rubs her left calf and looks out the window of her small basement-level apartment, tucked around the back of a suburban Long Island home. Outside, tree limbs are sagging under heavy new-fallen snow. That’s a concern, since cold and moisture exacerbate the fibromyalgia that has robbed Schwier of her career, her income and her identity.

“Today’s a reasonable pain day,” she says. “I am fresh out of opiates, though.”

The 60 hydrocodone pills she gets each month for the pain are supposed to be enough, but sometimes she can’t help but take more than her allotted two a day. So now she has to wait, pill-free, until she receives her February supply. Thankfully, the 58-year-old has another option, one she’s baked into cookies, that should get her through the dry period — although she doesn’t like to talk about it all that much....

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