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Home 🌿 Marijuana Politics 🌿 Louisiana needs leaders who will fight for medical marijuana reform 🌿

Louisiana needs leaders who will fight for medical marijuana reform

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Submitted by Marijuana News on Wed, 09/16/2015 - 15:31

My 9-year-old daughter, Kalie, has Dravet syndrome, a rare epilepsy syndrome that causes frequent dangerous seizures with debilitating effects. She started having seizures when she was 6 months old, and since then has experienced hundreds of seizures and dozens of hospitalizations.

Despite this, Kalie is a beautiful, happy little girl who tries to keep her disability from defining her, but some days it seems impossible. Every day, twice a day, I give my 45-pound daughter seven different medications to try to suppress her seizures, but they don’t always work. Even when they do prevent her seizures, the medications take their toll with both temporary and persistent side effects, and I can see how she suffers.

Kalie is one of 800 people with Dravet, and one of 3 million Americans who suffer from some form of “intractable epilepsy,” epilepsy causing frequent, uncontrolled seizures that can lead to brain damage and even...

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